Nadezda Laporionok, the toddler whose family have been desperately fundraising to raise money for life saving treatment, has sadly passed away. The two year old passed away during the early hours of yesterday morning (Tuesday) around 5.30am.
Heartbreakingly, Nadezda’s mother Olesia confirmed the news on Facebook by saying, “today at 5.30am, my little princess passed away. God has got another beautiful angel, I will love you forever, my world.”
The little girl had been suffering from a rare form of cancer known as ‘Rhabdomyosarcoma’ that was extremely difficult to treat, and sadly lost her long gruelling battle. Nadezda was born with a cleft palate, problems with swallowing, a hernia, and Beckwith-Wiedeman, but last October she was diagnosed with the life threatening form of cancer.
Nadezda had been receiving chemotherapy and radiotherapy at Royal Belfast Hospital for Sick Children, but had recently took a turn for the worse in recent weeks as the cancer spread to her brain and spine.
Nadezda’s parents, Olesia and Aleksandr, who are Lithuanian, have lived in Fermanagh for over 10 years, and her father Aleksandr worked as a chef at the Manor House Country Hotel.
The family had been fundraising since last year to raise money to take Nadezda to Israel for life saving treatment in a medical centre which specialised in her condition. The family detailed their journey on the Facebook page ‘Little Princess Battle’ but unfortunately Nadezda lost her fight before receiving life saving treatment.Her remains are reposing in Mc Kerveys Funeral Home 20 Erne Drive, Ederney from Wednesday March 29th from 1pm to 9pm. Funeral service at 11am on Thursday in Funeral Home followed by burial in Edenclaw Cemetery.
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